ABOUT
Some of our Collaborators
Read-It-To-Me is about doing the right thing, trying to leave a legacy rather than building a unicorn.
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Below are some of our Collaborators who we are sharing this transformational Journey with
Multi-centre, multi country clinical trials :
The Christie Hospital, Manchester, UK
Vall d’Hebron, Insititute of Oncology, VHIO, Spain
Working with the NIHR Biomedical Research Centre (BRC) in Leicester, a research package for a feasibility study evaluating the use of accelerometers to capture physical activity levels in cancer patients on early phase clinical trials (APACE) has been submitted for approval. The study aims to evaluate the feasibility of collecting accelerometer assessed physical activity and sleep data from patients with advanced cancer on early phase clinical trials in 8 sites across UK, Spain and Italy. An optional module has been incorporated to enable the eNUTRI nutritional tool to 3. 4 Technical Hub for deployment & adoption of DHPs be used at the UK sites to evaluate its usability in an early phase cancer setting. To increase inclusivity and accessibility within the APACE trial, Read-it-to-me (RITM) will be used, allowing participants secure access to trial specific information in their chosen language.
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As part of patient and public involvement, three focus groups were conducted (in UK and Italy), to gain feedback on the overall study design, the inclusion of the applications (eNutri and RITM) and the patient information.
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Accelerometer devices and training will be provided for free by the NIHR BRC in Leicester. They will also provide expert support in the charging, use and interpretation of data collected from the devices.
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Details of the work are referenced on Page 12 of their annual report.
Research for all: Creating patient information together.
The Christie NHS Hospital, Manchester, UK
Greater Manchester (GM) has an increasingly ethnically diverse (ED) population. Between 2011 and 2021, the ED population in GM grew by 51.9%. This is much higher than the national increase.
By 2021, about a quarter of GM’s residents identified as being from an ED background. Among them, Asian communities made up the largest ethnic group.
GM is a home to many ED communities and a wide variety of languages. At least 91 main languages are spoken in the area. The most common non-English languages are Urdu, Polish, and Arabic.
Despite the diversity, ED groups are less likely to take part in clinical trials. This limits their access to new treatments. It also means research findings may not reflect all groups of people (2,3,4,5). In cancer trials it is crucial that everyone has equal access to treatments. This ensures that trial results include the experience of diverse populations.
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The Christie NHS Hospital Trust has partnered with Read It To Me, RITM to :-
Engage with internal teams to improve data collection practices and better identify patients’ needs.
Engage with Urdu-speaking communities to build trust and understand barriers to research participation.
Co-create accessible, culturally relevant educational materials for Urdu-speaking communities.
The project uses Read It To Me, RITM as a scalable model for inclusive communication, with materials embedded in the RITM platform. If successful, this model can be adapted for other language communities, supporting wider institutional change.